A Superhero… who traded his cape for wings…

Today we remember and honor Devon… like everyday for many. Send your mom and sisters a hug bud…

climbing up the polka dot tree


Yesterday… what a pile of emotions… so hard to find correct words and to define feelings…

Yesterday, a family we have met on our journey, said goodbye to their amazing Superhero and Maddie welcomed a new friend… a friend who had a very different DIPG experience, a friend who was older when he was diagnosed and when he took off for heaven… but I know she was glad to see him, glad our families met and her foundation got to help his family.

I feel such a sadness for his family, for just like us, we regular humans don’t posess Superhero powers or strength- nor are we blessed with all the peace and grace of an angel… our angels are okay, but we are broken.  We will have an empty to carry forever, we will have a pain that’s unbearable, we will stand and move with a numbness that is not…

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